Yesterday I had another seizure like the dozen or so I’ve had in the past three years. As I mentioned at the time of the accident 4 weeks ago that left me with broken ribs and shoulder blade and collarbone (and sent me to the hospital for close to a week), my fall down the stairs was caused by one of these seizures. My car accident which took away my right to drive was the result of another seizure four weeks before that.
The worst part of these seizures is that after blacking out (and falling or actually carrying out some activities), I remember nothing until I come out of it… maybe a few minutes later, but occasionally a much longer time. Those who have experienced seeing me in such a state have confirmed that I talk to them and often do things… something I have never had a memory of.
My fear now is that these seizures may start coming more frequently. I’ve been through a large number of medical tests with no results. One doctor thinks it might be epilepsy and a couple of weeks ago had me watch out and see if new seizures happened, even with prescribed medication. I’ll have to call her today and tell her it has happened… not something I look forward to.
Elly is afraid that I’ll have one while she is at work and that I will fall and hurt myself with ho one around. I fear that, too… but I’ve got to go on living somehow.
Actually, this blog is one of the things that keeps me going and for that I thank the several hundred readers who view it every day. Sorry I’ve spoken about it now… I’ll try to lay off in the future.
- Treating epilepsy (fijitimes.com)
- Identification of a gene that may prevent epileptic seizures (thedailyshift.com)
- July Epilepsy Research News Excerpts (foundnewsthatmatters.wordpress.com)
- Neuroscientists may have found new gene that causes epilepsy seizures (siliconrepublic.com)
- How Is Epilepsy Triggered? (medicalnewstoday.com)
- The Good Fight (finishsomething.wordpress.com)
- A Seizure (maggiemendus.wordpress.com)
- Don’t Look at This Site if You’re Prone to Seizures (mashable.com)
- A lot of the pain is gone, but what’s left is still miserable. (underthelobsterscope.wordpress.com)
- Back on the blog…but this will be slow. (underthelobsterscope.wordpress.com)
I blew my morning this morning with a Neurologists visit in Hagerstown. I see this doctor every six months because he has me on a prescription to not have the strange blackouts I had last year (he says they are seizures, but apparently I function normally during them…I just don’t remember what I’ve done when I recognize my surroundings again.
Anyway… it takes close to an hour to drive to this Dr.’s office, five or six minutes to go over insurance information and copay stuff with the girl at the front desk, then, being shown to a little room, I wait.
Then he comes in and asks me if I’m taking my meds (yes, I say) and have I had any seizures (no, I say)…good, he says, I’ll see you in November.
My total time with the Dr. is 4.5 minutes. I don’t know how much the insurance company is paying for this, or what they are going to charge me, but my main thought is “I could have done this over the phone.”
You’d think he’d tap my knees or look in my ears or something. But he didn’t (I didn’t even get put on a scale…the girl who checked me in asked me what I weighed. I could have said anything.)
The medical world is a gaggle of thieves.